At the AIDS Law Project of Pennsylvania, we believe “AIDS is hard enough, justice shouldn’t be.” Every day we work to secure justice for our clients.
Justice Unspoken: Paying the price for disrespect
Our client hadn’t paid her rent and was facing eviction. She was ready to leave, especially after the landlord’s son attacked her spouse over the unpaid rent.
We represented her to make sure the eviction judgment was for the right amount and to spare her from the humiliating verbal assault the landlord promised to deliver in court.
After a hearing that lasted only a few minutes, the parties agreed the tenant would pay one month’s rent and that she would vacate immediately.
The landlord however, was not completely satisfied. She complained loudly to the Judge that she didn’t care about the money and just wanted the tenants out.
In response, the Judge ordered that the tenant pay only $95 court costs, instead of the $900 rent plus court costs, the tenant had agreed to pay.
With our assistance, the client saved her dignity and $900.
Justice Birthed: Clients at needle exchange site take a step forward
Twice a week, the AIDS Law Project of Pennsylvania holds clinic hours at Prevention Point Philadelphia (PPP), the city’s only legal syringe exchange. We offer free legal services to clients who don’t usually seek assistance, despite their need for it. Many of these clients have no identification documents. Without these documents, clients struggle to find legal employment or stable housing or to even get health care.
The first step to obtaining identification documents is getting a birth certificate.
Recently, we were able to provide assistance in obtaining birth certificates for two women at PPP.
We met the first woman almost 22 months ago. She requested help getting a birth certificate. We ordered it, but we didn’t see her again until two weeks ago. When she finally showed up, she reported that she had been drug-free for 6 months and was committed to staying clean. She was delighted that we had her birth certificate waiting for her. We wish her well as she continues with her recovery.
The second woman was in a hurry to get her life in order. She wanted a birth certificate so she could get a driver’s license and a job. Even though we told her it would take 8-12 weeks to arrive, she checked with us frequently to see if we had it. By the time it arrived two weeks ago, she had found a job. She smiled broadly when we handed it to her and rushed out to get her driver’s license.
Justice Explained: Training medical professionals on public benefits
Part of our mission is to educate on access to healthcare. Last week, we conducted a training in State College, Pa. for more than 70 medical professionals.
The 4.5-hour training was attended by physicians, psychologists, nurses, medical case managers, counselors, and social workers from around the state and included information on Medical Assistance, Medicare, the Special Pharmaceuticals Benefits Program (SPBP), and Social Security disability programs.
The audience left better prepared to navigate the public benefits and insurance systems to ensure the best possible health outcomes for their patients.
Justice Zoned: Finding a stable space to call home
Our client panicked when his landlord told him to vacate immediately.
The tenant was living in a four-unit apartment building, although it was only zoned for three. Our client, who had lived in the unit for five years, knew about the zoning problem. The landlord assured him that their appeal to the Zoning Board would all work out.
A week before the tenant was to renew his lease for another year, the landlord lost their latest appeal and failed to tell our client. The tenant remained in his apartment for a few months before he received the phone call instructing him to move out. The landlord claimed that the Office of Licenses and Inspections directed him to remove the tenant’s kitchen and bathroom immediately, so as to make the apartment uninhabitable.
The landlord offered to place the tenant in an apartment in another building, but the rent was $225 more a month. After we advised him of his rights, the tenant asked for our help in negotiating with the landlord. We asked the landlord to refund his entire October rent, immediately return his security deposit, and provide $500 for moving expenses.
With $1,800 in hand the day he moved out, he is looking for a new apartment to settle into.
Justice Boo!-ed: A wickedly fun party to support vitally important work
Love reading our #JusticeUpdates and wish you could play a role in one? Now is your chance. We will be fighting for justice at our annual Halloween party, BOO! @BAHDEEBAHDU. The theme of this year’s party is “Wretched Excess” and in that spirit we have doubled the fun!
Join us for a seated three-course dinner paired with fine wines on Thursday, Oct. 26. Come back the next night, Friday, Oct. 27 for a wild dance party. Costumes are encouraged both nights.
Dinner starts at 6pm. Tickets are $250 and include admission to the dance party the following night.
Dance party starts 9pm and tickets are $50.
Both events are at bahdeebahdu, 1522 N. American Street, Philadelphia.
To buy tickets, go to aidslawpa.org.
Justice Preempted: An offer that was too good to be true
Our client is a 53-year-old man, who has lived in his home for 19 years. Seven years ago, he was sick and unable to work. He was facing foreclosure because he fell behind on the payments. We helped him refinance his mortgage, obtain long term disability benefits, and remain in his home.
Recently, he received a time-limited offer in the mail to refinance his mortgage. The offer looked attractive and promised him great savings. He turned to us for guidance.
We reviewed the projected mortgage modification. We explained that the calculated payments are estimates and that if he accepted the offer, the final prices could be higher and he would be forced to accept them. Once we explained that the mortgage modification process has more room for negotiation on costs than the offer provided him, he felt empowered.
He no longer felt pressured to accept the time-limited offer and decided to consider his options on his own time table.
Justice Wikied: Working, walking, and running to end AIDS stigma
For almost 30 years we have been fighting discrimination against people living with HIV.
Check out our Wikipedia page to see our latest victories:
We’re proud of the work that we’ve done to challenge AIDS stigma and our goal is to get to zero – zero new infections, zero deaths, zero stigma – and Getting to Zero is the theme for this year’s AIDS Walk!
For 31 years, the AIDS Fund has presented the AIDS Walk. Join us on Sunday, October 15, 2017 for the 31st Annual AIDS Walk/Philly 5K! We are Team #8. Walk or run with us to end AIDS stigma. The 5K Run begins at 7:30am and the Walk begins at 9am. Come say hello and meet us at the foot of the Philadelphia Museum of Art stairs for our team photo at 8:30am. For more information, go to: aidswalkphilly.org
Justice Added-Up: Family of four counts on benefits
Our client is a 24 year-old mother, living with HIV. She has a 9 year-old child. When her mother died suddenly, she arranged for her two teen siblings to live with her. She reported her increased household size to the Department of Human Services (DHS) and applied for food stamps and Medicaid for her siblings.
Instead of everyone in the household becoming eligible, DHS terminated her and her child’s benefits.
She contacted us for help. We quickly determined that DHS had included her siblings’ Social Security survivor benefits in assessing the family income, but failed to count the increased number of household members. DHS was counting the income of four people, but applying the eligibility limit for two.
We filed an appeal and provided documentation that our client’s siblings were living with her. DHS redid their calculations and determined the whole family was eligible for benefits. With this support, our client is prepared to keep her family healthy, well-fed and together.
Justice Retrieved: Financial ruin leads to chaos for a generous woman
Our client came to us in February 2017. She was homeless and her Social Security disability benefits had been suspended. Her troubles began when she received a settlement payment following a personal injury.
Several years earlier, she was injured when she fell into a hole. In October 2015, she received $12,000 as compensation for her injuries. She was so grateful to have survived the incident that she spent almost all of the money on her family for large Thanksgiving and Christmas celebrations. She also gave a generous gift to the Good Samaritan who rescued her from the hole.
She did not know that she was required to report this settlement to the Social Security Administration (SSA). Once they learned of it, the SSA suspended her benefits, imposed a 15-month penalty, and an $8,000 overpayment. With her benefits suspended and no other income or resources, she was unable to pay the rent and ultimately became homeless.
We reviewed her SSA file and determined her ineligibility period should have only been for the two months in which she spent all the money on holiday gifts to her family and friend. By the end of December, she had spent all of the money and was no longer ineligible for benefits.
We successfully argued that her benefits be immediately reinstated because the ineligibility period ended in December 2015. We also convinced the SSA that her overpayment should be reduced because with no income and no place to live, it would be hard for her to repay the debt.
With the trauma behind her and her benefits reinstated, she has begun to look for a new place to live.
Justice Cared-For: Northeastern Pennsylvania residential care facility settles employment discrimination case with HIV-positive CNA
A northeastern Pennsylvania residential care facility has agreed to pay $30,000 to settle an employment discrimination claim on behalf of a certified nursing assistant who was fired shortly after his employer learned he is living with HIV.
The AIDS Law Project filed a complaint with the U.S. Equal Employment Opportunity Commission (EEOC) in September 2016 alleging that the facility violated the federal Americans with Disabilities Act and the Pennsylvania Human Relations Act.
After working at the residential care facility for eight months, our client was offered a promotion to a management position. The promotion offer was contained in a letter that described our client as “a valued asset to our organization and paramount to our community’s success.”
Six days after receiving a promotion offer, he disclosed that he and his partner were recently diagnosed with HIV to explain why he was unable to work his overnight shift. Five days after disclosing his status, he was terminated.
Prior to disclosing his HIV status, the CNA client received no complaints about his work performance. His work was frequently praised by his supervisors, he was assigned to train new coworkers, and on several occasions he was encouraged to apply for a promotion.
In the spring of 2016, our client’s partner became sick and had to be hospitalized. In the hospital, his partner found out he had HIV. The client then got tested, and he too was HIV positive.
Within hours of disclosing his HIV status, our client was contacted by the owner of the facility and instructed to attend a meeting the following day. At that meeting, he was placed on a 30-day probationary period for alleged performance issues. Five days later, he was terminated, effective immediately. The employer alleged that he had committed a minor time-keeping error.
We are happy to report he is already hard at work at another facility, providing quality and compassionate care.
For more than 30 years, infection control protocols, known as universal precautions, have been recommended by the Centers for Disease Control (CDC) to create safe workplaces for patients and providers. These precautions assume that all blood and other bodily fluids are potentially infectious and health care providers should: routinely use barriers (such as gloves and/or goggles) when anticipating contact with blood or bodily fluids; immediately wash hands and other skin surfaces after contact with blood or bodily fluids; and carefully handle and dispose of sharp instruments during and after use.
According to the Centers for Disease Control, there has not been a documented case of HIV transmission from an infected healthcare worker in the US since 1990.
Justice Worked: Transitioning from disability benefits to employment and back again
Our client is a 64-year-old woman who has been living with HIV for 30 years and on Social Security disability benefits. She began to feel well enough to return to work and got a job with a social service organization.
She knew the first step was to contact the Social Security office so she didn’t risk losing the Medicare that enabled her to feel well enough to work in the first place. She also wanted to be sure that if her job didn’t work out, or if she wasn’t well enough to continue with her job, that she would still be eligible for the social security disability benefits that she fought so hard to get so many years ago.
She called the AIDS Law Project of Pennsylvania for help navigating.
We explained to her that Social Security has an incentive program that encourages disabled people to work. Some people are able to collect their disability benefits and keep their Medicare as they test their ability to work during the Trial Work Period (TWP). We assisted her in reporting her new income and she kept her benefits during this Trial Work Period. At the end of the Trial Work Period, we made sure that Social Security stopped her disability benefits.
After working for a year and a half, the client’s health began to deteriorate and she felt she could no longer work. She called us again for assistance. We devised a plan to help her transition from employment back to social security disability benefits. The client took a break from working to focus on her health and her disability benefits resumed as soon as her employment income stopped.
If she is ready to try employment again, we will be there to advise her at every step along the way.
Justice Metered: A tenant stands up to her dishonest landlord
Our client is the mother of three teenage children. She is also living with HIV and is a recent cancer survivor. She contacted us after she became suspicious her landlord was taking advantage of her.
She had signed a lease agreeing to pay one third of the water bill for the three story building, which only had one meter. The other rental apartment and the landlord’s business office were supposed to be responsible for the remainder.
Although initially our client paid what the landlord told her, after a few months she became concerned she was paying for more than her share. After her landlord failed to respond to her numerous requests for copies of her water bill, she realized she needed legal help.
After multiple requests by our office, her landlord finally provided copies of the bills. Our analysis showed that she was being charged for balances accrued before she was a tenant, as well as a period in which the other rental was empty.
The AIDS Law Project’s advocacy resulted in her landlord agreeing to deduct $300 from her $750 rent. The client was very happy to have her money returned to her, especially because she had decided not to renew her lease and needed money for moving expenses.
The client recently moved into her new apartment and called to let us know how much she appreciated our help. We are happy that we could help her stand up to her landlord and hope she and her family are enjoying their new home.
Justice Rehabilitated: Disabled man gets a chance for a stable life, despite history of drug addiction
Living on the streets with HIV, schizophrenia, bipolar disorder, uncontrolled diabetes resulting in ulcers on his foot, and peripheral neuropathy has made treatment and stability almost impossible for our 59 year-old client. Drug use offered him an occasional escape from his painful life.
He applied for Social Security disability benefits for years, but was repeatedly denied because he is also addicted to drugs. According to federal law, a person may not be awarded benefits if alcohol and drug addiction are considered material to their disability.
Finally, he sought the help of the AIDS Law Project and with our representation he was awarded disability benefits.
At the Social Security hearing, we argued that our client’s drug addiction is not material to his disability. The administrative law judge agreed that the client’s multiple health impairments, advanced age and limited past work experience render him unable to work, regardless of his drug addiction.
With profound physical and mental disabilities and no steady income, a stable life would be forever out of his reach. The client is now living in a Philadelphia drug rehabilitation facility. We hope that this regular income will help him continue on his path to finally finding some peace in his life.
Justice Expedited: A quick restoration of benefits
Our 64-year old client is illiterate, has an anxiety disorder and is living with HIV.
His monthly Social Security disability check is his sole source of income. When it didn’t arrive, he took all his mail to his case manager, who quickly determined that his disability benefits and Medicaid were terminated because he failed to complete paperwork.
The client and case manager called us for help. The 10-day appeal deadline – which would have allowed the client to keep benefits while appealing the case – had already passed.
A hearing to restore his Medicaid would take approximately 6 weeks to 3 months to schedule, while a hearing to restore his Social Security disability benefits could take a year or longer.
To ensure that he has quick access to Medicaid, we immediately called the County Assistance Office explaining to the caseworker and everyone up the supervisory chain that the law required them to evaluate him for eligibility in other Medicaid categories before terminating his benefits. Within 24 hours, his Medicaid was restored.
We also filed a good cause appeal to have his Social Security benefits continued, which was granted a week later.
Justice Renamed: A new name for a safe future
Our client married his now ex-husband in May 2013. The relationship became increasingly violent and his husband was ultimately imprisoned in 2015 for assaulting him. After divorcing his violently abusive spouse, our client started going by a different name socially and moved several times. Fearful for his safety, he tried to initiate a legal name change, but couldn’t complete the process on his own.
Name changes require publication of a notice in the newspaper. Our client was afraid that publishing a notice would enable his ex-husband to find him. When he came to the AIDS Law Project for help, he was not aware that there is an exception to the publication requirement for survivors of intimate partner violence.
We filed the name change petition asking for a waiver of the publication requirement and that the record be sealed. A private hearing was held in the Judge’s chambers. After listening to our client’s testimony about his former marriage, the Judge granted the waiver, ordered the client’s name to be changed and sealed the record.
Our client was incredibly grateful and finally feels like he can stop looking over his shoulder and move on with his life.
Justice Electrified: A quick bankruptcy keeps NJ woman from losing her power
Our client, a 41-year-old disabled woman, lives in a Section 8 subsidized house with her two teenage children in rural Salem County, New Jersey. The family has lived in the house for 15 years and it is in great disrepair.
She has a history of domestic violence and is afraid to talk to the landlord, who refuses to make repairs. With broken windows and no insulation, the house is expensive to heat and her electric bills average $800 month. Her sole source of income is her monthly $700 Social Security disability check. She tries to pay at least $350 a month toward the heating, but every month her debt grows.
Recently, the electric company refused to accept her partial payments and threatened to shut off her power. She called the AIDS Law Project’s Southern New Jersey office for help. We sprang into action and filed a chapter 7 bankruptcy, which canceled her debt and prevented the shut-off.
Now without this debt hanging over her, we referred the woman to a social service agency to help her find secure and affordable housing.
Justice Refocused: Photographer names his “family of choice” to inherit his art
A senior client came to the AIDS Law Project seeking assistance in executing a will and medical power of attorney. Estranged from his immediate family, he struggled with who he would name on his documents.
He will be leaving behind a collection of his photographs, which are inspired by his life as a gay man and his personal experiences dealing with health crises. We encouraged him to consider naming individuals who appreciate his work and will respect his medical wishes. Ultimately, the client chose individuals who will honor his memory and treasure his art collection.
Justice Shielded: Crippling Money Judgment Averted Against Minor Child and Family Housing Crisis Alleviated
We represented a Liberian healthcare worker in an eviction claim after her 15 year-old son was named as the defendant. She had fallen behind on her rent because her work hours were diminished. She didn’t know where to turn for help.
Representing tenants is not new to us, but we were particularly concerned that a court judgment would be entered against the 15 year-old, which would impact his credit record and his future ability to access student loans and housing.
At the municipal court hearing, we presented evidence that the defendant is a minor. With the now-contrite landlord’s attorney aware of his mistake, he decided to withdraw the case entirely. With a money judgment averted, we are negotiating the client’s move to affordable housing.
Justice Turned-Up: P.A. Dept. of Corrections allows Turn It Up! Staying Strong Inside in all Pennsylvania prisons
The SERO Project, a national network of people with HIV that includes a large membership of incarcerated people, publishes Turn It Up! Staying Strong Inside. The latest edition is 34-pages of stories, information, fact sheets and resources for health and wellness.
In May 2017, SERO mailed over 30,000 copies of Turn It Up! Staying Strong Inside. Pennsylvania’s Department of Corrections banned the publication from all state facilities claiming it “promotes negative behavior within the correctional facility.” In particular, the P.A. Dept. of Corrections objected to a 1/2 page report of an unsuccessful hunger strike by inmates peacefully voicing grievances with a medical co-pay policy.
The AIDS Law Project appealed the decision arguing that under the First Amendment inmates are entitled to receive information on asserting their rights.
Earlier this month, in response to the appeal, P.A. Dept. of Corrections reversed its decision. Turn It Up! will be allowed to reach all inmates in Pennsylvania state facilities.
Justice Recalculated: Fixing Social Security’s mistake and finding a $15,000 windfall
Our client’s monthly Social Security disability check was lower than she expected. She knew her check would be offset by her worker’s compensation settlement, but she expected more than $200 a month.
In May 2017, she contacted us for help. We calculated the amount we believed she was due and filed a Request for Reconsideration asking the Social Security Administration (SSA) to redo their math. Two months later, SSA determined that they owed her more than $15,000 in retroactive benefits. Her monthly check was also increased to $900 a month.
Justice Delivered: OB/GYN practice settles after turning away an HIV positive woman because she was “too sick”
Our client was referred to a small OB/GYN practice in western Pennsylvania for a colposcopy. Upon arrival, she was escorted to an exam room by a nurse, and asked questions about her health, including her HIV status. The client disclosed that she has HIV and began to get undressed in preparation for the invasive procedure. The nurse told her “don’t bother getting undressed.”
Forty-five minutes later, a physician entered the examination room and told our client she was “too sick.” He said he expected her colposcopy results to indicate cancer and, without examining her, referred her to a specialty practice. He made this referral even though the OB/GYN practice is affiliated with a gynecological oncologist. Our client left humiliated, angry and in tears. She found another practice willing to perform the colposcopy and cancer was thankfully ruled out.
Our client was still upset when she contacted our office in December of 2016. In response, the AIDS Law Project of Pennsylvania sent a demand letter to the OB/GYN practice. Four months later, the practice paid her $10,000 for her humiliation and emotional distress.
Justice Secured: Settlement for Iraq War Vet Denied Aquatic Therapy because of HIV
On June 23, 2016, the AIDS Law Project of Pennsylvania filed a federal lawsuit on behalf of an HIV-positive Iraq war veteran. The lawsuit alleged Bonnie Jones, who used a pseudonym to protect her identity, was denied aquatic therapy because she has HIV. Defendants Drayer Physical Therapy and OSS Orthopaedic Hospital deny liability.
On May 16, 2017, this case was settled to the mutual satisfaction of all parties.
- 6/25/16 (York Daily Record) Iraq War vet denied therapy due to HIV, lawsuit alleges
- 6/7/17 (York Daily Record) Iraq War vet settles lawsuit alleging HIV-related discrimination
Justice Served: Successful settlement for chef and fiancé fired because of HIV status
The couple had recently moved to the small Pennsylvania town, where one of them had grown up. They were eager to plant hometown roots and prepare to be married. Both had gotten jobs in May 2016 at a country club restaurant, one as a chef. Sadly, everything fell apart quickly.
On their first day at work, the couple prepared a meal to follow the funeral of a country club member. The employer and guests praised them for their effort. When they arrived for work on their second day, the chef was told he was fired because his employer had learned he had HIV.
The chef’s fiancé, who does not have HIV, was initially allowed to keep his job, but his hours were steadily reduced until he was fired a few weeks later.
“They were incredulous,” said Adrian M. Lowe, a staff attorney at the AIDS Law Project of Pennsylvania. “They’d heard stories about this kind of stigma, but they’d never experienced it.”
Federal and state laws clearly prohibit discrimination against people with HIV and AIDS. The protection also extends to those who are regarded as having HIV and AIDS and to those who associate with people living with HIV and AIDS. Further, the Centers for Disease Control and Prevention have long recognized that food handlers with HIV do not present a risk of HIV transmission to co-workers or consumers.
The first step the AIDS Law Project takes in these kinds of cases is to send a letter to the employer explaining the law and medical science concerning HIV and requesting an informal resolution of the matter.
If that doesn’t work, complaints can be filed with various state and federal agencies or the matter can be taken to court.
Although both the science and the law concerning HIV and AIDS have long been established, the AIDS Law Project handled 189 discrimination cases in 2016.
In this case, the restaurant responded quickly to the letter and a settlement including undisclosed financial compensation was reached.
The settlement covered both the chef and his fiancé, who was also targeted because of his association with a person with HIV.
As a result of the incident, the couple was unemployed and unable to find work. They were forced to leave their small town and move out-of-state for jobs in their field. With this case behind them, they are once again planting seeds and planning a wedding.
In addition to Adrian, the AIDS Law Project’s executive director, Ronda B. Goldfein, of counsel Sarah Schalman-Bergen and summer associate Imani Hudson-Hill, Temple University Beasley School of Law, worked on the case.
At the AIDS Law Project of Pennsylvania, we believe “AIDS is hard enough, justice shouldn’t be.” Every day we work to secure justice for our clients. Starting June 14, 2017, we will issue a weekly #JusticeUpdate to report on our work.
The future looked promising for the young man as he prepared to further his education by attending graduate school. Then he got an unexpected and unpleasant surprise in March that threatened to derail his plans.
The Social Security Administration notified him that it had overpaid him about $13,500 in benefits and wanted the money back. His monthly benefit also was cut off, money he needed until he was in graduate school The man, 33, had been meticulous about his records and thought he had provided all the relevant information to Social Security.
“He was befuddled,” said Jacob M. Eden, a staff attorney at the AIDS Law Project. “He was upset he was receiving these bills.”
The student appealed the decision on his own in April, but was rejected again. Social Security said he should not have been paid in any given month when he had more than $2,000 in his bank account. The man was aware of the rule, but also thought student loan payments were exempt. He was right. The only months he had more than $2,000 was when he’d received a student loan payment.
“He knew the rules,” Jacob said. “He provided all the information required and he still lost.”
Although he had provided all the relevant information, Social Security said they couldn’t determine the timing and amounts of the payments. A second appeal would have to go to an administrative law judge, which could take many months. That would have played havoc with the man’s plans for his future. He wanted to sell his house by the end of June so he could move to go to graduate school. Reviewing the case, Jacob realized Social Security had not given the man a face-to-face meeting, as regulation required.
“They made the decision before doing all the due process,” Jacob said.
Jacob successfully argued that the case should stay in the local Social Security office, avoiding lengthy delays. A personal conference was scheduled in May, which Jacob attended with his client. But it wasn’t over yet. Although Social Security restarted the man’s $733-a-month benefit, it said it would deduct money for the overpayment, which should never have been imposed. Jacob was able to deal with that problem with a phone call. Social Security agreed that the man owed nothing.
Getting justice for a client doesn’t have to mean filing a lawsuit and fighting it out in court. A recent case provides an example of what AIDS Law Project Staff Attorney Adrian M. Lowe calls preventative lawyering.
The AIDS Law Project recently helped a woman whose life was in turmoil when she contacted us. Her husband had become seriously ill and was admitted to a hospital, where he was diagnosed with AIDS. Soon after, she tested HIV positive. The woman had worked for a small, family-owned business for two decades. She loved her job and considered her boss a major source of support, so she shared her diagnosis.
Although initially supportive, that soon changed. A few days after her disclosure, her boss told her she would have to tell all the other employees about her diagnosis for insurance liability reasons. If she didn’t, he said, he would fire her. She didn’t want to tell her coworkers – at that point she had only told two close friends. But she also didn’t want to antagonize her employer or lose her job.
Her doctor referred her to the AIDS Law Project, where she spoke with Lowe and Executive Director Ronda B. Goldfein.
“She felt cornered,” Adrian said. “Everything was piling up against her.”
Ronda and Adrian reassured her that there was no legal obligation to disclose, and that she could take legal action if she was fired because of her HIV. With their client clear on her legal rights, the three strategized about how to maintain her right to privacy while avoiding a confrontation with her boss.
Clearly, her boss needed to be educated about how universal precautions prevent a risk of transmission in the workplace. They decided that message was better coming from a doctor, rather than getting an intimidating call from a lawyer. The woman asked her boss to contact her doctor, which he did. After learning about the facts about HIV, her boss said she did not have to inform her coworkers. Instead, he organized an all-staff training on workplace safety, including universal precautions. The training did not single out the woman or HIV in any way.
“We’re always happy to get a good outcome without subjecting the client to the trauma of litigation,” Ronda said. “Contrary to what you see on television, lawsuits aren’t fun for anyone.”
The 64-year-old man was losing weight at a dangerous rate, a consequence of his HIV, a diagnosis he received in 1992. He was often overwhelmed with malaise. Fatigue was a constant companion.
“It affected every area of his life,” said Adrian M. Lowe, a staff attorney at the AIDS Law Project.
His doctor hoped a liquid nutritional supplement would remedy the decline and wrote him a prescription for three cans a day. He took the prescription to the specialty pharmacy he used, assuming his insurance would cover it. He had Medicare and Medicaid. He had Medicare because of his work history, and Medicaid through the Medical Assistance for Worker’s with a Disability (MAWD) because he had a small part-time job. Then he got the bad news. His insurance refused to pay for it. His only income was Social Security Disability Insurance. There was no way he could pay for the supplement on his own.
“He was discouraged,” Adrian said. “He had thought it would be covered.”
After the man came to the AIDS Law Project in December 2015, Adrian set about figuring out what to do. He learned that Medicaid does in fact cover nutritional supplements, but requires prior authorization, which the client had not obtained. The medical need must be documented to obtain prior authorization, so Adrian worked with his client’s doctor and nutritionist to assemble all the necessary medical records, a lengthy process. Adrian was finally able to apply for prior authorization in May and in July the state Office of Medical Assistance Programs approved it.
“He was grateful that he finally got what his doctor had prescribed.” Adrian said. “No one should have to wait that long to get something as basic as nutritional supplements.”
It was on her first day in her new rented house, after the frenzy of moving in, that the woman noticed the horrendous smell.
“It was horrible,” she said. “It was turning my stomach.”
The woman had hoped her new home would bring some peace to her life after a period of instability. It wasn’t shaping up that way. The smell was so bad and pervasive that she said it triggered a panic attack and she had to go to the hospital. She never spent a single night in the house, instead seeking shelter with family.
As she later investigated the source of the smell, she went to the basement, which she had not been able to inspect before she moved in. She found more than a foot of water. She notified the landlord, who took almost a week to have the basement cleaned. By that point the woman decided she’d had enough and notified the landlord she just wanted her money back so she could find a new place. The landlord never responded, so she contacted the AIDS Law Project.
Despite repeated efforts over several months by Malissa L. Durham, an Equal Justice Works Fellow at the AIDS Law Project, the landlord never responded. While researching the case in landlord tenant court, Malissa saw that the landlord had filed an eviction notice against her client. The landlord knew she had never stayed at the house, but still posted the eviction notice and court date on the front door. With the woman not at the hearing to defend herself, the judge granted the eviction and back rent to the landlord.
Malissa was eventually able to get a new eviction hearing, where the judge reversed the original order. Then Malissa successfully sued on her client’s behalf in small claims court to get her security deposit back. The landlord didn’t pay within 30 days, as required by law, so the woman was able to collect double the judgment, about $1,900.
“The AIDS Law Project was the first place I called,” she said. “If I’d done it on my own, I may not have gotten anything back.”
A Montgomery County hospital has agreed to pay $25,000 to settle a claim brought by the AIDS Law Project of Pennsylvania on behalf of a woman who said she was denied medical treatment because she is HIV positive.
The woman alleged that in 2013 she was turned away from Mercy Suburban Hospital’s bariatric facility after she reported during the intake process that she has HIV.
On the recommendation of her primary care doctor, the woman was seeking bariatric surgery. After learning she had HIV, a doctor who had been scheduled to meet with her told a nurse to inform her he could not do the surgery because she was HIV positive, according to the Justice Department’s investigation.
The doctor never examined the woman or reviewed her past medical records.
The AIDS Law Project filed a complaint with the U.S. Department of Justice alleging that the hospital violated the Americans with Disabilities Act.
The department pursued the complaint and on Oct. 5 announced that the hospital had agreed to pay the woman $20,000 in damages as well as a $5,000 civil penalty to the United States. Mercy also agreed to implement a non-discrimination policy, advertise the policy and train employees and contractors to abide by it. Although Mercy settled the complaint, it denied liability.
AIDS Law Project Executive Director Ronda B. Goldfein and Staff Attorney Adrian M. Lowe represented the woman. Assistant United States Attorney Jacqueline C. Romero investigated the case.
The settlement agreement can be found here.
The man loved his work. His job was his identity.
At age 39, he was proud of the fact that he had worked steadily since he was 14. For those in his immediate circles, work was often intermittent and hard to come by. He was always “that guy who works.”
Furthermore, he believed his work at a residential facility for troubled youth was providing an invaluable service.
“He believed in work,” said Adrian M. Lowe, Esq., a staff attorney for the AIDS Law Project of Pennsylvania. “He liked helping young people get back on track.”
His life nose-dived the moment his employer found out he had HIV. First he was suspended. Then he was fired.
“They said, ‘We’re sorry to see you go, but state law says you can’t work here because you have an infectious disease,’” Adrian said.
“He kind of fell apart,” recalled Ronda B. Goldfein, Esq., executive director of the AIDS Law Project. “His work gave him meaning. It gave him context to his life. All of a sudden he feels he has no life and no future.”
The man knew about the AIDS Law Project from his social work, so gave us a call.
Unfortunately, it is a battle we have had to fight many times during the years. About 30 state licensing boards require workers to be free of infectious, contagious or communicable diseases. Some employers assumed that applied to HIV, which simply was not the case because it is not transmitted through casual contact in the workplace.
The AIDS Law Project led an initiative to clarify the law, and in 2011 the state issued new guidelines explicitly excluding diseases such as HIV.
By firing the man, the employer wound up on the wrong side of federal and state anti-discrimination law.
Part of our mission is to educate people, including employers, on all aspects of the law regarding HIV and AIDS. Our efforts appear to be bearing fruit.
When we contacted the employer’s lawyers, they quickly acknowledged that our client had been fired based on faulty advice about the law.
Our client, who had been out of work for about 26 weeks, got his job back in October, as well as back pay and compensatory damages.
And his identity and dignity were restored.
“He’s glad to be reclaiming who he was,” Ronda said. “He’s back on track.”
The 52-year-old woman was scheduled to move in March 1, but the apartment was full of trash and unlivable.
She finally moved in March 10, only to find a host of other problems. The apartment was infested with ants, roaches and bed bugs. There was mold in bathroom, the bathroom and kitchen sinks flooded and the toilet often backed up.
Those conditions would have been tough for anyone to tolerate, but the woman also had an anxiety disorder, which made her situation unbearable, said Jennifer Collins, Esq., the housing attorney for the AIDS Law Project.
“To have this chaos where she lived, it was incredibly stressful,” Jennifer said. “There were lots of tears.”
The woman had gone to a meeting of a tenant’s rights non-profit, where she was advised to write to the landlord and threaten to withhold the rent. When the problem weren’t fixed she started putting her rent in escrow, so she could prove later she intended to pay it.
That was the right thing to do, but by the time she came to the AIDS Law Project the situation had spiraled beyond her control and understanding.
The woman received a housing subsidy for people with AIDS that is administered by a local non-profit agency. The landlord told the agency the woman had stopped paying rent – without mentioning the letter she had sent. The agency, believing she had violated the terms of the subsidy, terminated it. . Without the subsidy, the woman whose sole income was $750 a month in Social Security, could not afford the apartment.
The landlord also filed an eviction action in Municipal Court demanding $3,293 in back rent.
Our housing paralegal Michael Gluk, supervised by Jennifer, took on the case.
“Every time she called she was very distressed,” Michael said. “She would often call in tears.”
Michael reassured her that he would help her through the complicated process.
Michael appealed the housing subsidy loss with the city’s Office of Housing and Community Development (OHCD).He worked with the non-profit agency to resolve the conflict. The OHCD ordered the agency to continue the subsidy until the appeal hearing.
Michael advised his client to contact the city’s Licenses and Inspections department and request that they visit the apartment to document the conditions. Armed with the L & I report, Jennifer successfully represented the client at the eviction hearing. The eviction was denied and the landlord agreed to fix all the problems with the apartment.
With the denial of the eviction complaint to bolster him, Michael successfully represented the woman at his first OHCD hearing. Her housing subsidy was restored, giving the woman a sense of security and a safe, clean home.
“It felt good to be able to help her,” Michael said.
Many migrants who come to the United States from Mexico are seeking economic opportunities and a better way of life.
Some have additional reasons, such as a man Yolanda French Lollis, Esq., the AIDS Law Project’s managing attorney, has represented periodically for about 15 years.
“He wanted a better life for himself as a gay man,” Yolanda said. “It was difficult being openly gay in Mexico.”
He came to this country in the 1990s on a tourist visa, eventually staying in a Pennsylvania city. One night in 1996 he was walking down the street when he was jumped by a stranger, dragged into a building and raped.
“He was traumatized and humiliated by the experience,” Yolanda said. “He had anxiety, despair, he couldn’t trust anybody.”
It got even worse.
After the violent assault he was diagnosed with HIV. Despite fearing homophobia in Mexico, he returned to his country because his tourist visa was expiring. Going back also put his health at risk. His doctor said the HIV treatment he was getting here was probably unavailable in Mexico.
“Borders determine a lot of things,” Yolanda said. “People on one side of the border get health care. People on the other side don’t.”
He was able to get another temporary visa in 2000. The AIDS Law Project helped him get that visa extended, but eventually he returned to Mexico as that visa was expiring.
Unable to get a new visa in Mexico, the man made the decision in 2005 to undertake the dangerous journey to cross the border into the US.
He came to us again in 2011, seeking to stay in the country with appropriate documentation. As he had been the victim of a rape in the US, Yolanda knew he could be eligible for a U Visa, a nonimmigrant visa for people who have been the victims of crime, suffered substantial physical or mental abuse and are willing to help law enforcement in the investigation of the crime.
Although the man met those criteria, he had another tough hurdle to clear.
Because he entered the US without permission, he was ineligible for the U visa without a waiver. Yolanda successfully argued that he deserved a waiver because of his personal circumstances and his many contributions to his community.
Although many undocumented immigrants live in the shadows, the man was immersed in community life. He was an activist, focusing on health care, civil rights and immigrant issues. Among other things, he had spoken to medical students about Latino cultural differences and worked with the local police on racial profiling issues.
“The list goes on and on.” Yolanda said. “It’s just incredible.”
Our case file for him is thick with letters of support from community members describing the contributions he has made.
In 2013, we were notified that our client was eligible for a U Visa, but that wasn’t the end of it. There is a limit on the number of U Visas that can be issued in a year and the cap had been reached for 2013.
Finally, in October he was granted his U Visa. In three years he can apply for a permanent resident visa, or green card.
“He is a great advocate for himself and other people,” Yolanda said. “For him, it’s all about health care.”
It had been a long and often painful journey for the woman who fled her abusive husband in the 1990s.
The final straw was when he cut her with a knife and threatened her baby.
Mother and child moved into a shelter, and then began rebuilding their lives. They overcame struggles to get health care and housing.
Now her 18-year-old son, on the brink of going to college, wanted to make a change in his own life. All these years he had carried his abusive father’s last name. Now he wanted to be rid of it. He wanted a new last name.
The AIDS Law Project had represented the family numerous times in the past, so the son turned to us for help.
At 18, it was easier for him to change his name than when he was a minor. For one, he didn’t need parental permission. He had no contact with his father and didn’t want any.
“He wanted peace of mind and closure,” said Malissa L. Durham, J.D., an Equal Justice Works Fellow, sponsored by the Norflet Progress Fund at the AIDS Law Project. “His legal name tied him to his father.”
Legally changing your name is a relatively simple procedure, but the circumstances of the case required additional precautions that Malissa and Staff Attorney Juan Baez, Esq. needed to address.
The trauma of domestic violence had created a fear that remained with the family.
“He didn’t want his father, or anyone in his father’s family, to find out where he lived,” Juan said.
Along with the name change, Juan and Malissa secured a waiver of publication of the decision and got the record sealed.
Not long after our client turned 18, he got his new name.
“Severing ties with his father was the best birthday present he could get,” Juan said.
A health care worker visited his home last year to perform wound care. During the visit the worker told his uncle to keep the children in the household away from him because he had HIV.
The warning about casual contact demonstrated a disturbing lack of accurate information about HIV transmission. It also clearly violated state and federal confidentiality laws.
The team of Staff Attorney Adrian Lowe and Executive Director Ronda Goldfein contacted the home health care company about the incident. Thankfully, the company accepted responsibility and agreed to pay our client $15,000. Equally important, the company agreed to implement HIV transmission and confidentiality training for its staff.
Both HIV and immigration law are extraordinarily complicated and ever evolving. The intersection of the two can be impossible for many people to comprehend. Way back in 2000, a woman who had moved to the Philadelphia area from Liberia with her four young children contacted us. They were allowed to enter the country in 1996 to be reunited with their husband and father, who had been granted political asylum.
When her husband became ill and died, the family’s future turned uncertain. Through the vagaries of immigration law, they were no longer eligible for asylum through him and had to apply on their own behalf.
Managing Attorney Yolanda French Lollis helped the mother and four children finally get asylum in 2006, which allowed them to apply for a green card.
The children were granted green cards, but the mother, who had HIV, faced numerous hurdles. Although an HIV waiver existed at the time, an applicant had to be healthy to get it and she was too sick to qualify.
Despite the obstacles, we continued to fight for the family. A combination of the mother’s improving health and changes in immigration law concerning HIV eventually allowed us to help her apply for a green card.
It was granted in December. Throughout the ordeal her children thrived in their new country. All four have graduated from college.
“She said, ‘Thank you for not giving up on me,’” Lollis said.
A client had been denied Supplemental Security Income, or SSI, because her local Social Security Administration office in rural Pennsylvania kept miscalculating her finances. Our lawyer went to a hearing before an administrative law judge, where he methodically did the math, explaining why the woman was entitled to SSI. The judge agreed, granting the woman back payments for the SSI she had been denied and allowed her to get new payments.
A client came to us with a whopping overpayment of $136,000 in Social Security disability payments; SSA said he shouldn’t have received any disability payments because he was “working” at the time. He received a modest stipend over several years while studying for a university degree. We argued the stipend wasn’t tied to any requirements, such as teaching, so it can’t be counted as work. Social Security agreed with her, significantly reducing the overpayment demand.
Two of our clients were in a Philadelphia hospital that offers psychiatric treatment and drug and alcohol rehabilitation. They discovered that their names were on a list of patients with HIV that was left in the open, violating their confidentiality. They soon became pariahs on their floor, so much so that one of the clients was shunned in a group hug at the end of a counseling session. We sued the hospital, eventually getting a financial settlement for each client. More importantly, the hospital was reminded that patients deserve the peace of mind that their private information will be protected, especially when there are enough challenges to seeking and getting help with mental health, substance abuse and HIV-related issues.
A client who lives in public housing came to us with an eviction notice after being unable to pay her rent as a result of illness – first her child’s, then hers. She was a couple of days away from a lockout and we knew we had to move fast. After an understanding of the woman’s circumstances, and a recalculating of the rent based on her lack of employment, the client and her two young children were able to remain in their home. At last contact, the woman was on the mend and ready to resume working.
A mentally-ill client had been refused Social Security disability, which provides income to people whose disability prevents them from working. We pieced together the facts necessary to mount an appeal. Among evidence that had been ignored, we discovered the man had attempted suicide several times and had mutilated parts of his body. A judge eventually ruled in favor of the client, even repeating much of our brief in his decision. Finally, the client was scheduled to start receiving the much-needed disability checks that had been wrongly denied to him.
A client who is an HIV-positive single mother of four was fired from her job at a snack-food manufacturer after her supervisors found out her status. After a 4-year-long legal struggle, the company and the national staffing agency that placed her in the job agreed to settle discrimination claims out of court. Just as importantly, the staffing agency also agreed to distribute posters to all the food-service businesses it places workers at, reminding them that federal and state law prohibits discrimination against workers with HIV, and that HIV/AIDS is not on the list of diseases that can be transmitted through food handling.
A client called us seeking permanency-planning help for her two boys, aged 8 and 10. Pennsylvania’s Standby Guardianship law, which the AIDS Law Project authored, assists terminally ill parents make arrangements for the future care of their children. We made an emergency visit to the hospital and later went to court, ensuring that the boys were placed with their great-uncle after her death, in accordance with the client’s wishes.
A client who was fighting cancer came to us after getting a foreclosure notice on the Philadelphia home he lives in with his partner, one he grew up in and inherited from his mother. We negotiated with the mortgage company, which agreed on terms the client was able to meet. With the stress of losing his home off his mind, he focused on his health – and is now cancer-free.
A client who is a low-wage worker and speaks little English learned he was entitled to a significant tax refund. Then he received word that there was a problem with his return. At one point, the IRS was even claiming he owed money. We were able to show that the client was entitled to the tax deductions he claimed and to the refund.
A client was in danger of being thrown out of his apartment because he had three “rescue” cats and his building had a one-pet policy. We learned the client suffers from HIV-related depression. We showed that the cats were actually therapeutic, making their presence a “reasonable accommodation” under disability laws.
A client’s food stamp benefits were cut nearly in half without clear explanation. She visited her local welfare office, which offered little help. We reviewed the case, finding that state welfare officials had failed to consider the client’s housing subsidy, which made it seem she had more money than she really did. Because of our work, her benefits were restored.
Launching Case Closed
In an effort to more fully explain our work, we will issue periodic reports on our activity.